Founder's Blog #04

Hello all! I hope Christmas and New Year fulfilled all your expectations and

brought lots of joy. We had a great time and for those of you who don’t know

me very well, all I need is all our 4 kids at home and every box is ticked – love

the noise, confusion and constant cooking!

With regards to my MS, nothing major to report. Luckily, I haven’t had any

major “episodes”, just that very slow progression of aches and pains in my

legs. The potential side effects that I was bracing myself for from the

Ocrelizumab treatment, have not affected my everyday life, especially not my

job. So, for that reason alone, I am an advocate for Ocrelizumab as far as

helping with the symptoms of Secondary Progressive MS. My nails are like

paper and digestion after meals is not always easy, but I believe that could be

to do with where the lesions are within my spinal cord… Put simply, the parts

of the body which are struggling to receive messages from the brain.

On an extremely pleasant note, I need to raise £5000 in order to get an official

charity number, and I am only £1000 short – it has taken only 4 months to get

this far so thank you all so much for supporting me and my fundraising. I will

be able to open up doors for larger events, occasions and opportunities for

donation once I have that number, with all proceeds going to the Ryan Centre.

I want to give a particular message to anyone who suffers, knows of anyone

suffering or even anyone who is interested in MS, who wants to discuss

anything whatsoever about the disease, the coping methods, medication, or

any factors that you may be dealing with, be it positive or negative. Do feel

free to email me at any point on sportinms@gmail.com. Likewise, for anyone

wishing to contribute to the charity in any form or fashion, please do not

hesitate to get in touch.

Once again, the support has been unreal – people often stop me in town and

mention this blog and Facebook page and it just touches my heart. Thank you.

Lots of love,

Antoinett