Hello all,
What a month September has been! Before I keep it all up-to-date, firstly I need to thank you all for the enormous support and fantastic response you have given to Sportin MS. The main purpose is to share with you and anyone diagnosed with Secondary Progressive or any other form of MS, that life continues - it's mostly down to a positive mind-set.
I was very fortunate to become the responsibility of a neurologist at St. George's hospital who introduced me to the possibilities of Ocrelizumab. Treatment started with a 6-hour intravenous session on the 1st October. I have a follow up 6-hour session in two weeks, before a 6-month break. Prior to the drug, the truth is, I was petrified. MS is a very subjective, DNA-based illness with no way of predicting how it will affect each individual. Lots of "it might cause this, it might cause that". The cliché "fear of the unknown" is very applicable when embarking on treatments. For me - so far so good. Two days after, I went for a run with my dog. I was tired but functioning just fine. I met the fantastic Natalie (another patient) during treatment and it was great to laugh about falling over, needing a wee in the bushes and all other muscular calamities. If you can't laugh, you can't cope - if you can't share, you can't gain knowledge, love and support. My mind-set is, it will never go away, there is no cure, but boy, am I going to maximise my good times! I'll be in-touch in October. Lots of love, Antoinette x